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CONNECTING THE HEREDITARY ANGIOEDEMA (HAE) COMMUNITY

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EXPERT INSIGHTS

Explore articles written by HAE experts for tips and information to support your healthy lifestyle.

Hereditary Angioedema in Females
By Susan Waserman, MSc, MD, FRCPC and Heather Cruickshank, BA 

What Parents and Caregivers Need to Know about a Child with HAE
By Amin Kanani, MD, FRCPC

Shared Decision-Making in HAE Management
By Chrystyna Kalicinsky, MD, FRCPC

Impact of HAE on Mental Health
By Dawn Goodyear, MD, MSc, FRCPC

PATIENT STORIES

Watch videos from HAE patients and share your experience with the community.

Jordyn’s Story

View Jordyn’s story and how she started experiencing symptoms as a 16-year-old dancer and cheerleader, her journey to diagnosis, her treatment and care path, and the impact on her life and that of her family.

Anne’s Story

Hear Anne’s story of a lifetime with HAE and why she is determined not to let it stop her, including her love of dogsledding and hiking with her Alaskan Malamute and playing baseball.

Shannon’s Story

Listen to HAE patient Shannon’s story, including her concerns about passing HAE to her children, making the choice with her husband to have kids, testing her children, and raising kids with HAE.

Living with HAE: OK is Not Enough

Hereditary angioedema has many faces. It hides in many conditions, and it gets mistreated and misdiagnosed. Hear Anne’s story and learn more from Dr. Stephen Betschel.
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HOW DOES HEREDITARY ANGIOEDEMA (HAE) IMPACT YOUR DAILY LIFE?

Use these tools to assess your HAE and work with your healthcare team to improve quality of life.

reflection guide

Reflection Guide

Consider the full impact of HAE on your day-to-day life

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Self Assessment

Self-Assessment Questionnaire 

Answer simple but important questions to understand your level of HAE control 

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care plan

Care Plan

Create a care plan with your healthcare team that considers your unique needs

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mental health

Mental Health

Our library of mental health resources is full of tips to help you take care of yourself while living with HAE

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Remember, YOU are an important member of your healthcare team. Your input is critical to achieve the best outcome possible for your daily living.

If you think you have HAE symptoms and have not been diagnosed yet, these resources can help you start your care plan journey.

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Treaters and patients must now aim for optimal control, not just ‘better than before’. Optimal control should include minimal impact of HAE on quality of life. myHAEcheckup.ca will allow patients to better assess their level of control, including any impact of HAE on their life between attacks. This information can then be used during meetings with their physicians to better assess control and discuss optimizing care.

Chrystyna Kalicinsky, MD, FRCPC
Director, Allergy & Clinical Immunology
University of Manitoba | Winnipeg, MB
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HAE Canada’s goal is to help create a better life for patients living with HAE. In order to do so, patients must first understand how HAE impacts their life, not only during an attack, but between attacks. Takeda’s online resources can be beneficial in assessing a patient’s true level of HAE control; and will empower patients to take charge of their life.

HAE Canada Team