Downloadable Resources
For Patients
Living Well with HAE Booklet
This booklet provides you with some suggestions to help you live life to the fullest.
Topics include the importance of emotional support, family and HAE, relationships and HAE, HAE at school and in the workplace, travelling with HAE, and answers to some commonly asked questions.
Understanding HAE Booklet
This booklet was created to help you understand the cause, diagnosis, and treatment of HAE. It also offers information and support about family testing.
For caregivers and family members
Family Testing Letter
If you or someone you care for has been diagnosed with HAE, you can download this letter template and share it with family members to inform them of the importance of testing for this hereditary condition.
School Letter
If you have a school-aged child with HAE, you can download and complete this letter template to inform your child’s teachers and administrators of important details surrounding their condition.