Resources

HAE Canada Patient
Organization

HAE Canada Patient Organization

HAE Canada is a patient group formed in 2010 to work with physicians, nurses, and other healthcare related professionals to create a better life for HAE patients living in Canada. All HAE patients in Canada are encouraged to join this group. There is no membership fee and you will find many helpful resources. For more information, visit www.haecanada.net.

Angio‑oedème héréditaire du Québec (AOHQ)

L’angio-oedème héréditaire du Québec (AOHQ)

The purpose of Angio-oedème héréditaire du Québec is to contribute to improving the health and quality of life of people with HAE. In addition to raising public awareness of this condition, the organization’s mission is to train medical staff so that they can make a correct diagnosis, and thus better direct patients to specialists.

For further education, visit https://www.aohq.ca/ or call toll free 1‑855‑561‑4563.

Canadian Hereditary Angioedema Network (CHAEN)

Canadian Hereditary Angioedema Network (CHAEN)

If you are looking for a CHAEN physician and/or clinic, please visit:

https://chaen-rcah.ca/patient-resources/.

HAEi

HAEi

HAEi is the International Patient Organization for C1 Inhibitor Deficiencies (https://www.haei.org/)

The website contains help, support, and educational information for patients.

Living Well With HAE booklet

Living Well With HAE booklet

This booklet provides you with some suggestions to help you live life to the fullest.

Topics include the importance of emotional support, family and HAE, relationships and HAE, HAE at school and in the workplace, travelling with HAE, and answers to some commonly asked questions.

DOWNLOAD PDF